One thing I did not mention in my blog is that my husband must continue to go to work. He is our financial means and he carries our health insurance.
I have taken a leave from my nighttime job to be able to focus on taking care of our 3 children as well as taking care of everything both inside and outside the house. We have always worked it out that Tom works during the day and I worked at night so one of us was always there for our children.
And it's not that Tom doesn't want to work but there are days that he just has absolutely no energy whatsoever but he has to maintain a 40 hour work week.
His company does have fml but then that effects his monthly bonus. So one can just imagine how really run down he is working while getting these treatments.
I have set up a fundraiser to help ease toms burden of having to work on those really horrible days. You can check it out at Giveforward.com Then search Help Tom fight his fight.
My oldest daughter Ariel is also in the midst of organizing a fundraiser beef and beer type. Once she has that all together I will post the details.