.

Why Not Choose Death?

There can only be dignity while we live

 

New Jersey may soon vote whether to give doctors the legal authority to prescribe medications for terminal patients to take, if they wish, to commit suicide.  Incredibly, the macabre name of this bill is the “Death with Dignity Act.”  As an oncologist, as the first hospice certified physician in the state, as a caregiver who has sat at the final bedside of thousands, let me declare emphatically - There is no dignity in death.  Death is dead.  Death is not an action or process.  Life is the process and there can only be dignity while we live.  As long as our focus is on getting to death by the quickest route, we risk depriving the living of the opportunity to live with dignity.

The NJ Home News Tribune (Sunday 11/25/2012) presented four excellent views on whether this bill should receive our support.  Reduced to each argument's essence these opinions are: 

  • Rev. Bill Neeley (Unitarian): Choosing the time of one’s death, especially if one is suffering and terminally ill, is a matter of personal freedom and for intellectually intact patients should be an option.
  • Rev. Michael Manning (Catholic): Only God can chose the time of death, the bill threatens the physician-patient relationship and may be a slippery slope.
  • Roseann Sellani (RN, JD): Having this choice would improve honest communication about end-of-life between patients and doctors and give a vital freedom.
  • Donald Pendley (Hospice): The bill devalues the importance of life and distracts from efforts to provide pain and symptom control. 

What is being said, in other words, is that because doctors communicate badly, or at least insufficiently, about end-of-life issues, and because doctors provide erratic and often inadequate comfort care for terminal patients, that patients should be given the freedom, and assistance, to die.  In addition, this argument hinges on the concept that for large numbers of patients, quality, near the end-of-life, is not possible.  Therefore, this bill deems it reasonable to turn to your doctor and say, “listen, I do not believe you can help me live, why don’t you just help me die.”

This logic is flawed and places patients in great danger.  The first error is to assume that doctors do not and cannot communicate well about dying.  There is no doubt this is an area where the physician-patient relationship often breaks down, but there is also no doubt that it is an increasing focus of education and learning.  Medical students now routinely take classes in end-of-life care, physicians are much more focused on the skills necessary and the specialty of Palliative Care, for which communication is a core skill, is exploding.  For most patients and families, basic information about their situation relieves much suffering and confusion.  Doctors can do better.  We must demand it. 

The idea that most patients experience uncontrollable suffering at the end of their lives is without foundation.  With proper palliative care more than 90% of pain can be controlled, we can relieve anxiety (i.e. fear), shortness of breath, depression and most other symptoms.  In fact, recent data shows that many terminal cancer patients not only live better, but longer, receiving hospice care rather than active chemotherapy.  This bill deprives patients of these highly effective techniques by giving up and says to the physician there is no need to offer quality care, death will do. 

Is suicide an individual freedom?  That is an ethical question far above my pay grade.  However, that is not the freedom proposed.  What is proposed is “physician-assisted suicide.”  That involves two people and their relationship and I have absolutely no doubt that the relationship will be corrupted.  Having been involved in such interactions every day for decades, if the active reach for death is on the table, the physician-patient relationship will never be the same.  Physicians and patients already struggle with end-of-life communication; I cannot imagine that trust will improve with the addition of assisted suicide.  The motivations of patient, family and physician will be suspect, tainted and goals distorted. 

The physician-patient relationship by definition focuses on life, and the end of our lives is still about life, not death, and can be lived with quality.  To undermine the foundation of the physician’s role is to deprive the patient and family of that opportunity.  If we truly wish suicide to be a realistic alternative then perhaps someone else, like perhaps funeral home directors, should do it.  At least that relationship is clear.  Why does that sound ridiculous?  Because funeral homes are about being dead and doctors are about being alive.  Why don’t we just keep it that way?

 

As published in Sunrise Rounds.

 

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Eggs-n-Toast December 04, 2012 at 11:49 PM
Well Said Christopher! Well said.
Monk December 05, 2012 at 03:32 PM
Boldly and courageously seize control of your own life ... and commit suicide? It still sounds like an acceptance of failure or hopelessness. Kate is right. There is nothing to prevent a person from committing suicide at present. So, why is legislation being proposed? And there is certainly no call for bringing suicide under the aegis of healthcare.
Bill December 05, 2012 at 03:54 PM
@ Monk - failure ? How is dieing a failure ? Everyone dies. Some of us just don't think laying around for months ( or years) pumped up on pain meds is any way to live waiting for the inevitable. I certainly hope you are never in the situation to go through it, or watch someone go through it. But you might have a different opinion if you do. "There is nothing to prevent a person from committing suicide at present" Really ? Announce your plans to commit suicide and see what happens. Or have a family member sitting by (maybe to comfort you in your last moments) while you do it and see the legal nightmare they end up in afterwards.
Katy Lake December 05, 2012 at 04:05 PM
Monk is correct, and he says it well. Suicide is an admission of failure, except for the mentally ill, who at least have an excuse. The suiciders who want to kill sick people usually have an ulterior motive. Many times it's to get their hands on the sick person's money (they consider it to be a "waste" if you spend your own money staying alive), or they're truly lunatics and think that people are a cancer on Mother Earth and the fewer of them, the better. Of course, they never, ever, EVER volunteer to remove themselves from the planet. It's always someone else they say needs to die, and the sooner the better. They are different from the mentally ill who for emotional reasons commit suicide - but they are unhinged, nonetheless.
Steve December 05, 2012 at 04:09 PM
Christopher is right. He says it better.

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